progress!

       Just wanted to give a quick update: Ian has a walker ordered. It is specially made for him and we should be getting it in a few weeks. He has his next MRI scheduled for mid December and we will go from there on what to do or not do depending on his progress and the status of his MRI. He is crawling more and more but he still prefers to scoot. Something else new ... he is trying to pull himself up! This makes me really excited because I know once he is successful with that walking is really just around the corner. So I consider him trying to pull up major progress. Just a few short weeks ago he showed no interest in pulling up. He has been successful pulling himself up only a couple of times, but I have a feeling in little time he will have it down. 

        Today he was pointing outside and whining. I knew what he wanted (to play outside) so I told him "Ian just say OUT and I will take you out" and sure enough he said "OUT" pretty clear! He has a little bit of trouble with consonants so it sounded like OW but it confirmed what I already knew. Ian understands everything going on around him he just doesn't really want to say much. When I promised him we would go outside he was quick to say something. So I will be doing that more!! If I have to bribe him to speak I have no problem with it.

        I just have to say I am so thankful Ian can eat on his own and he doesnt need oxygen or the fact that he is just a pretty healthy guy! I dont know who reads this, but I want parents of "different children" to know...its not the end of the world and once you mourn that perfect child life goes on and the new normal sets in and its just life. Its going to be ok. really.

My baby loooves to eat! :)

Change of Plans!

Well we have had a bit of change in our plans. This morning we had a appointment with Ians neurosurgeon. Dr Albert told us that he presented Ians case to a board of  Drs and some of them (including the chief surgeon) felt that surgery on Ian is probably unnecessary at this time. He explained in further detail that Ians spinal cord is not stretched like a normal tethered cord. It just has extra fatty tissue around it (lipoma). I asked if there is any chance he could have nerve damage from the lipoma if we dont operate. He told us they are going to keep such a close eye on him that the possibilty of that is slim to none. So it was our call. Scott and I felt the same. If there is no harm in being overcautious then lets just wait. It was a hard decision, but after it was made I had a overwhelming sense of peace and when that calmness came over me I knew we made the right decision. Ian will have a MRI in a couple months and we will become close friends with ACH I have feeling. So thats that.  


       Good news.....Ian is crawling!! On all fours! He was sitting in the living room scooting around Sunday and he just rolled over onto his belly pushed himself up in the quadruped stance and started crawling. It was amazing! We have about 15 videos of him doing it haha. He is also getting around alot with his walker at school and when I say walker its like a mini medical universal walker.  (pic below) I am hoping we can get one for home for him. They say he is extremly happy in it and I would love for him to be able to get around at home like he does at school. 

    Brooklynn is loving school. She gets sad on the weekends when she doesn't get to go. She loves her friends and her teachers. Yesterday she came home singing a song to me that went like this :You can relax now C'mon and open your eyes. Breathe deeply now I am with you Oh my sweet sweet child Who do you think you are? You are the child of God And that will never change. She said that's their nap time song...it was exactly what I wanted to hear and those lyrics have been echoing in my head since.

 So thats whats new with us. Thank you everyone for all the prayers and support. Its nice to know so many people are thinking about us.