Its been a while! In fact its been so long I dont know where to start. Hmmm ok, Iets just start from the top. I originally started this blog to be an outlet for myself mostly. I find myself not really needing that outlet anymore....at least not here, but I do realize I have family and some friends that like to know how things are going. So heres a little update on my Ian boy. If you have not seen Ian in a couple months you would be shocked at his vocabulary these days! He went from saying about 10 words to maybe 100 words (Im guessing) He repeats everything! Its not crystal clear and if you are not around him much you may need me to interpretate what he is saying, but he is talking folks! Not only is he talking he SINGS! He sings wheels on the bus, let it go (frozen), itsy bitsy spider, and Im pretty sure I heard him singing row row row your boat last night. He has very good pitch like his sister :) .
Ian is doing a "trial run" with a bone conductor hearing aid. We ordered his own Tuesday, and should be getting that in a month or two. A bone conductor is different from your standard hearing aid because it doesnt amplify sound it just bypasses the middle ear.His audiologist says he likely has nerve damage in his middle ear that is causing some hearing loss. Its hard to tell if its the bone conductor that is whats helping him talk or if its just a coincidence. Im still not 100% convinced, because even when he is not wearing it he talks better/more. . Im just glad Ian has such an amazing team taking care of him.
Ian has been at pathfinders since he was 13 months old, He goes Monday through Friday and gets all of his therapies there. I remember his first day there. I was a mess! I was terrified, these people dont know my baby! He is going to think we just abandoned him here! When we picked him up I could hear him laughing down the hall. Every August we are so sad when he has to graduate to the next class room up. Last year I didnt want him to leave Ms Getas class. She was so sweet and loved Ian in a very special way. They had a special bond and I was really worried. He moved to the big kid hallway and I quickly realized his new teachers really loved him to! Some mornings when he hasnt slept all night he climbs onto Mr David ( the eptime of "gentle giant") and rests right there in his giant lap. Ohh my gosh it doesnt get much sweeter guys! Im saying all this because I think Ian is where he is today (walking, talking, HAPPY) because of a couple things. 1 The Lord of course! every milestone I see Ian reach is like witnessing a miracle 2. Family who loves him unconditionally 3. Ians amazing teams at ACH and pathfinders, every one of them loves him and sees the same precious child I see.
Ian is still globally delayed dont get me wrong. He is more like at the level of a 2 year old than a 4 year old but there was a time in my life when I thought Ian may never walk (wrong) may never talk( WRONG) He is going to great things and I am so greatful to all the people helping him get there!
Ps: I cant believe I forgot not to include...Ian does not have fragile X! They did another gentic test looking for it and it came back normal!
Ps: I cant believe I forgot not to include...Ian does not have fragile X! They did another gentic test looking for it and it came back normal!
