Today was Ians long awaited appointment at Dennis Developmental Center. I was highly anticipating it because I thought we MIGHT get some answers on some things. So let me just start off saying this place is awesome and the staff there are phenomenal. They are so understanding and because I know they are so used to seeing kids like Ian I didn't have to worry about "what if he has a full blown fit here? They are not going to understand" I think Dr Fussell is a God send, and her nurse Lindsay too! Anyways...we get there and sit and talk to the nurse for a good 15 minutes just telling her where Ian is at, what its like day to day, how he is improved, and what hasn't She then asked us "Well how are YOU guys doing with this?" I got a BIG lump in my throat, I almost couldn't answer the question. Talk about catching me off guard. I have never been asked by any Dr, nurse, etc how I was doing under all this stress. I managed to get out "ummm its very stressful" she seemed genuine and it really meant a lot to me. She gave us the opportunity to ask any questions. So I asked about Autism. I got some interesting information. First IF he is autistic we are doing everything we would be doing anyways so its not like we are losing time or doing anything wrong. So we then met with Dr Fussell and talked about starting PECS in his speech therepy. PECS is a way to communicate using pictures. Here is a cool video of a kid with CP and autism using PECS http://www.youtube.com/watch?v=OKQdMH7Wiok We got about 6 different pamphlets from parents night out for parents with special needs children to more clinics he needs to go to. It was a lot of information! SO no big life changing answers but I think it was a good visit and Ian had a good time. If anyone knows about PECS or has had experience please let me know, Im very curious!
Here is Ian waiting for Dr Fussell
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