Well still no official date of Ians surgery. I have called and left lots of messages but no ones calling me back. As soon as I find out I will let everyone know. I have decided to cancel the spaghetti dinner the costs and expenses just were not going to work out to our advantage.BUT we are going to set up a account to give to the foundation in Ians name and as soon as I have a web address for that I will post it. We do want to raise awareness and donate for studies. Im looking into running and other ways to raise awareness. I want to thank everyone for the kind words and random messages I have been getting. Its really nice to hear. I have more peace this week about the actual surgery. I did the one thing that I said I wouldnt and googled "tethered cord surgery" and instead of a bunch of horror stories it made me feel better. I dont want to get my hopes up and expect Ian to be running around the house by Christmas, but at least the actual surgery itself isnt petrifying me like it was. If nothing comes out of it at least we can say we tried and we will never be wondering "what if".
Sometimes its really easy to feel sorry for myself and for Ian. Everyday I get a reminder of how good we really have it, and this is all pretty minor compared to others. So I thank God for two beautiful perfect children (in my eyes) they really are the biggest blessings...ever
******************************UPDATE*****************************
Ians surgery is scheduled for Sept 13th
Oh Chas, I am so glad you are gaining some peace. We know it is in God's hands and I am sure you are sick and tired of all the "good words" but I do firmly believe in prayer and you and Ian are covered by one heck of a prayer blanket. Hang in there and keep the faith. We love you all very much!
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