Starting over :(

Yes I had to start completely over on this blogging journey. Apparently blogspot made some changes the 6 months I had disappeared off this site and I lost everything :(((( . No good. The reason why I wanted to do a new entry is because I realized its been about a year since I realized something was not quite "right" with Ian and we began this very long heart wrenching journey with him. In this year Ian has had 2 MRIs, tubes in his ears, 3 urodynamic test, a EKG, genetic testing....and so on and so forth. We dont know much but what we do know is Ian has Chiari 1 malformation http://www.mayoclinic.com/health/chiari-malformation/DS00839 < if your curious, and tethered cord...a sort of kind of type of spina bifida. He will have to have surgery on this eventually. Im hoping sooner than later.So if you dont know Ian let me tell you a little bit about him  I am of course his mother so its definitely sugar coated with sprinkles on top). Ian is 2 now and his personality is just awesome. He is the most affectionate, sweetest, funny little man I know. Every night he gives me sugars by taking both of his hands and pulling my face to him and planting them on me....its the best thing ever. He does have a temper, but I believe its because he cant communicate the way he would like too. Ian does not walk or even crawl but he does scoot. I am sooo grateful that he figure out a way to get around. He goes to Pathfinders. I hate that he has to go, not that its not an awesome place its just I would love to be able to have more time with him at home, but its necessary...so he goes. The best part of my day is picking him up! Ian hasnt been given a diagnoses to why he doesnt talk. Sometimes I wonder if he has autism. He loves to spin the wheels on cars, he LOOOOVES watching fans and he does the flapping of the arms when he gets excited. I dont know whats going on in that little body of his but I know whatever the outcome is we are determined to give him the best life possible. If he grows up to be fully functioning...great. If he has to live with us forever thats 100% fine by me. Yes this blog is mainly going to be focused on him...mainly because its a good outlet for me and also to keep family and friends updated. On a small side note a few things that happened in the last 6 months: I graduated nursing school, Scott began the process of trying to get a PD job on Kauai (still in process) Brooklynn turned 4 and is about to start Pre K. The End..whew!